LILI ROAD – GHEYSENS

My name is Lili,
and one day in 2021,
everything collapsed…

Chronic pain, like migraines and fibromyalgia, is part of the lives of millions of people — and was long part of mine.

This invisible pain, often misunderstood, can deeply impact daily life.

Yet, living with chronic pain doesn’t prevent us from building, moving forward, and achieving our goals.

Between an artistic career, professional retraining, and family life with three children,
I led an intense life at full speed while learning to live with pain.

“Behind her apparent fragility,
we sense the strength of those who have fought to live.
She sings life, shouts hope.
The charm, fragility, and voice of Lili Road moved the audience.”
Vosges Matin

Until the day when chronic pain took over,
leaving me paralyzed.
“You’ll have to learn to live with it!”
This sentence, so many patients with fibromyalgia or chronic migraines hear it — and I too endured it repeatedly.

What followed was a brutal descent into hell
— loss of bearings, isolation, medical wandering…

A journey that I recount in my first book, J’ai mal mais je me soigne, where I share the often invisible realities of pain and possible paths to recovery.

Discover the book J’ai mal mais je me soigne

“It’s all in your head, Madam.”

Faced with medical wandering, endless waiting times to access pain centers
— which only 3% of patients manage to reach —
one truth became evident.
I had a choice.

Continue to endure these waves of chronic pain, day after day…
or learn to understand them, tame them, and ultimately… surf them.

So I chose to move forward.

I conducted a genuine investigation, around the world, in search of concrete solutions to regain control of my life.

I learned to surf these immense waves of chronic pain, where I once thought I would drown.

After ten years of battling eating disorders, when I emerged from anorexia,
I made myself a promise: to help others.

Life had taken me away from it… until pain brought me back.

But this time, I didn’t fight against my body.

I learned to listen to it, understand it, transform this ordeal.
This is how a new approach was born, at the crossroads of experience and neuroscience of pain.

Today, I keep that promise.

With humility, I share what I have learned, because one thing has become clear:
facing chronic pain, some of the most powerful keys are already within us.

Discover the MBC Method

Discover FriLi App

“Body disorders echoing soul disorders,
I discovered that living fully means savoring every moment.”